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D Schmitt's avatar

Amazing story and cannot wait to see the film.

Risking TMI here, but here goes.

My 38 yr old totally disabled, non-verbal but ambulatory son is diagnosed with Profound IDD, autism, CP, seizure disorder and SIBs. Now in residential care and is doing well.

When he was home and still, I would always take him with me on daily/weekend errands to help him socialize (as able) and to get him to walk around. He likes going places.

Standing in the check out line with him making noise (chants/verbalization -not words), some arm flapping and playing with a baby toy when he was 12 (still plays with same toys) others in line would obviously notice.

When I caught the gaze of younger children (5-10) they would look away, sort of embarrassed for noticing. I would say to them "He is pretty interesting isn't he? Would you like to know what a happened". "Yes" they would say. Me - "Do you remember when you were a baby and your parents had to do everything for you - Dressing, you , feeding you, even changing your diaper? "Yes" -- Me "then you grew up and are now able to do all those things for yourself." They would stand straight and proud -"Yes, I do that". I then say - My son's body grew up but his brain did not.

They say "Oh, I get it." Most then have a smile of awareness that different is different - and that was okay.

My goal was to have them see the next disabled person as a person, not only as disabled.

Apologies for the long post.

Randi Hacker's avatar

Has anyone ever read Motherless Brooklyn by Jonatham Lethem ? A realistic, sympathetic, often funny book about a young man with Tourette's and how he navigates life and love as part of the Brooklyn underworld. It is, in my opinion, Lethem's best work.

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